Research Advocacy Network - Advancing Patient-Focused Research
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One of the core values of Research Advocacy Network is to "share the word". We accomplish this through a number of mechanisms. Printed materials that have been produced by the Network are shared in downloadable formats through the links at the left.

Genomics in Cancer: An Advocate’s Guide and Training Manual Module
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The Research Advocacy Network has introduced a new education module for advocates interested in learning more about genetics and genomics and the role of this emerging field in cancer research.

The module covers the science behind genomics, including scientific concepts and examples of how genomic technology is currently being incorporated into clinical research. To help bring this information to life, the module also includes basic definitions, diagrams, and graphics - all in an effort to de-mystify the science and technology. The module was supported by an educational grant from Genomic Health.

Tissue Donation for Research Educational Materials
Tissue Donation Booklets

Why is it important for me to consider donating my tissue for research?
A booklet for prospective donors.
English version (pdf)  |  Spanish version (pdf)

The Importance of Tissue Samples in Research
A booklet to provide background for the members of IRB's (Institutional Review Boards) and ERBs (Ethical Review Boards).
English version (pdf)  |  Spanish version (pdf)

Order Printed Copies of Tissue Booklets
 
Tutorials
Understanding Pathology and Tissue Research:An Advocate's Guide
This guide was developed to help advocates and other interested individuals understand pathology as it relates to cancer. The guide also explains tissue research and its importance in identifying causes, treatments, and potential cures.
English Version (pdf) | Order the printed version
Understanding Clinical Trial Design: A Tutorial for Advocates
This 53 page bound workbook was developed for advocates to better understand selected statistical methods of designing clinical trials.
English Version (pdf) | Order the printed version
HER2 Testing: Summary for Breast Cancer PatientsTM
Based on the NCCN Task Force Report: HER2 Testing in Breast CancerTM
Developed by Research Advocacy Network and NCCN
English Version (pdf)
Posters
Influencing Patient Focused Research Through Advocate Interventions
Poster presented at the 2004 San Antonio Breast Cancer Symposium (SABCS)

Use of Focus Groups to Inform Clinical Trial Design
Poster presented at the 2005 Department of Defense (DOD) Era of Hope meeting

Adoption of Research Results in Community Oncology Practices
Poster presented at the ASCO 2006 Annual Meeting
Concept sheets
Tissue Education Materials to help you understand:
What is tissue?
Why should I consider donating my tissue?
The Treatment Development Process: The Role of Tissue





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