Publications-Download or Order

Research Advocacy Network offers a number of publications to help inform advocates about the research process.

Publications can be downloaded in pdf format by clicking on the "Download" button.

Printed publications can be ordered by clicking on the "Order Now" button. Printed publications will be shipped via surface mail and should be shipped within 2 weeks of placing the order. Please note: until a new ordering system can be installled a separate form will have to be submitted for each publication order. We apologize for any inconvenience. If you encounter problems with ordering please send an email to orders@researchadvocacy.org.

Tutorial: Pathology and Tissue Research

Tutorial for advocates to explain the importance of tissue and biospecimens in research studies and the science of pathology. Maximum quantity per order=5. For larger quantities, please contact info@researchadvocacy.org. Download Order Publication

Overview Brochure

Booklet explaining programs and services of Research Advocacy Network. Download in pdf form or order the printed version. Download Order Publication

Tutorial: Genomics in Cancer - Print Version

This tutorial is intended for advocates interested in learning more about genetics and genomics and the role of this emerging field in cancer research. The publication covers the science behind genomics, including scientific concepts and examples of how genomic technology is currently being incorporated into clinical research. To help bring this information to life, the module also includes basic definitions, diagrams, and graphics - all in an effort to de-mystify the science and technology. Development of this publication was supported by an educational grant from Genomic Health. PDF version is not available for this publication. Maximum quantity per order =1 Please contact info@researchadvocacy.org for larger quantities. Order Publication

Importance of Tissue Samples in Research (English)

This 11 page color booklet provides background information for IRB members and others on studies that involve collection of tissue for research. PLEASE NOTE: printed publication is currently out of stock. Download Order Publication

La importancia de las muestras de tejido en la investigación científica

Certified Spanish translation of "Importance of Tissue Samples in Research" Download Order Publication

Booklet: ¿Por qué es importante que yo considere donar tejidos para investigación la

Certified Spanish translation of Why is it important for me to consider donating my tissue for research? Download Order Publication

Why is it important for me to consider donating my tissue for research? (English)

This 11 page color booklet is available in English and Spanish* to help inform potential donors about the important aspects of tissue donation for research. Max quantity to order of printed publication= 25 Download Order Publication

The Promise of Personalized Medicine

10 page booklet explaing how new technologies are changing the way we think about and treat a wide range of diseases, including cancer. Download Order Publication

Tutorial: Biomarkers in Cancer

120 page tutorial explains the discovery and use of biomarkers in cancer. Please note PDF is a large file (6 MB). Maximum quantity per order of printed publication = 2. For larger quantities, please contact info@researchadvocacy.org. Download Order Publication

Tutorial: Understanding Clinical Trial Design

This 52 page tutorial was developed by Research Advocacy Network to assist research advocates in developing strategies and contributing to discussions about clinical trial design. Text includes an expanded glossary of terms, discussion of Bayesian statistical design. Authored by Jane Perlmutter, PhD and funded by the Advocacy Core of Indiana University Breast Cancer Center of Excellence for Individualization of Therapy (George Sledge, MD, Principal Investigator). Available in pdf and to order in printed form. Maximum quantity per order of printed publication=2. For larger quantities, please contact info@researchadvocacy.org. Download Order Publication

RAN Report: 2010 Survey Providing Results to Participants in Biospecimen Studies

This 4 page summary report of the survey in the summer of 2010 by Research Advocacy Network (RAN) to better understand how advocates feel about receiving results obtained from biospecimens. (Adobe pdf format) Download