Publications-Download or Order
Research Advocacy Network offers a number of publications to help inform advocates about the research process.
Publications can be downloaded in pdf format by clicking on the "Download" button.
Printed publications can be ordered by clicking on the "Order Now" button. Printed publications will be shipped via surface mail and should be shipped within 2 weeks of placing the order. Please note: until a new ordering system can be installled a separate form will have to be submitted for each publication order. We apologize for any inconvenience. If you encounter problems with ordering please send an email to .(JavaScript must be enabled to view this email address).
Overview Brochure
Booklet explaining programs and services of Research Advocacy Network. Download in pdf form or order the printed version.
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Tutorial: Genomics in Cancer - Print Version
This tutorial is intended for advocates interested in learning more about genetics and genomics and the role of this emerging field in cancer research. The publication covers the science behind genomics, including scientific concepts and examples of how genomic technology is currently being incorporated into clinical research. To help bring this information to life, the module also includes basic definitions, diagrams, and graphics - all in an effort to de-mystify the science and technology. Development of this publication was supported by an educational grant from Genomic Health. PDF version is not available for this publication.
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Importance of Tissue Samples in Research (English)
This 11 page color booklet provides background information for IRB members and others on studies that involve collection of tissue for research. It is available in English and Spanish*.
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La importancia de las muestras de tejido en la investigación científica
Certified Spanish translation of "Importance of Tissue Samples in Research"
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Booklet: ¿Por qué es importante que yo considere donar tejidos para investigación la
Certified Spanish translation of Why is it important for me to consider donating my tissue for research?
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Why is it important for me to consider donating my tissue for research? (English)
This 11 page color booklet is available in English and Spanish* to help inform potential donors about the important aspects of tissue donation for research.
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Booklet: The Promise of Personalized Medicine
Booklet describing the science driving personalized medicine and individualization of therapy in cancer.
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Tutorial: Biomarkers in Cancer
This 120 page tutorial. Please note PDF is a large file (6 MB)
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Tutorial: Understanding Clinical Trial Design
This 52 page tutorial was developed by Research Advocacy Network to assist research advocates in developing strategies and contributing to discussions about clinical trial design. Text includes an expanded glossary of terms, discussion of Bayesian statistical design. Authored by Jane Perlmutter, PhD and funded by the Advocacy Core of Indiana University Breast Cancer Center of Excellence for Individualization of Therapy (George Sledge, MD, Principal Investigator). Available in pdf and to order in printed form.
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RAN Report: 2010 Survey Providing Results to Participants in Biospecimen Studies
This 4 page summary report of the survey in the summer of 2010 by Research Advocacy Network (RAN) to better understand how advocates feel about receiving results obtained from biospecimens. (Adobe pdf format)
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Tutorial: Pathology and Tissue Research
Tutorial for advocates to explain the importance of tissue and biospecimens in research studies and the science of pathology.
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