Publications-Download or Order
Research Advocacy Network offers a number of publications to help inform advocates about the research process.
Publications can be downloaded in pdf format by clicking on the "Download" button.
Printed publications can be ordered by clicking on the "Order Now" button. Printed publications will be shipped via surface mail and should be shipped within 2 weeks of placing the order.
If you encounter problems with ordering please send an email to email@example.com.
Tutorial: Targeted Therapies
Targeted therapies and personalized medicine are areas important for patients and advocates and represent advancements in patient care through scientific discoveries. This tutorial was developed to help advocates and others interested in advancing the science and improving care for cancer patients. (Published 5/2013)Download
Tutorial: Quality of Life and Patient Reported Outcomes
Quality of life research and patient reported outcomes are areas that advocates can help influence and advance the science. This tutorial was developed to help advocates gain a better understanding so they can identify and illustrate the issues and problem-solve to support solutions. (Published 5/2013)Download
Tutorial: Pathology and Tissue Research
Tutorial for advocates to explain the importance of tissue and biospecimens in research studies and the science of pathology. Please note: there is a maximum of 2 printed copies per order. For orders of larger quantities, please contact firstname.lastname@example.org.Download
Booklet explaining programs and services of Research Advocacy Network. Download in pdf form or order the printed version.Download
Tutorial: Genomics in Cancer - Print Version
This tutorial is intended for advocates interested in learning more about genetics and genomics and the role of this emerging field in cancer research. The publication covers the science behind genomics, including scientific concepts and examples of how genomic technology is currently being incorporated into clinical research. To help bring this information to life, the module also includes basic definitions, diagrams, and graphics - all in an effort to de-mystify the science and technology. Development of this publication was supported by an educational grant from Genomic Health. PDF version is not available for this publication. Please note: there is a maximum of 2 printed copies per order. For orders of larger quantities, please contact email@example.com.
The Importance of Tissue Samples in Research (English)
This 11 page color booklet provides background information for IRB members and others on studies that involve collection of tissue for research. It is available in English and Spanish*. Sorry but the printed version is currently out of stock.Download
La importancia de las muestras de tejido en la investigación científica
Certified Spanish translation of "Importance of Tissue Samples in Research". Please note: there is a maximum of 25 printed copies per order. For orders of larger quantities, please contact firstname.lastname@example.org.Download
¿Por qué es importante que yo considere donar tejidos para investigación la
Certified Spanish translation of Why is it important for me to consider donating my tissue for research? Please note: there is a maximum of 25 printed copies per order. For orders of larger quantities, please contact email@example.com.Download
Why is it important for me to consider donating my tissue for research? (English)
This 11 page color booklet is available in English and Spanish* to help inform potential donors about the important aspects of tissue donation for research. Please note: there is a maximum of 10 printed copies per order. For orders of larger quantities, please contact firstname.lastname@example.org.Download
The Promise of Personalized Medicine
10 page booklet explaing how new technologies are changing the way we think about and treat a wide range of diseases, including cancer.Download
Tutorial: Biomarkers in Cancer
This 84 page tutorial explains the how biomarkers are utilized in cancer research. Please note - if downloading the pdf it is a large file (approx 7 MB) and is best viewed with Adobe Acrobat. Please note: there is a maximum of 2 printed copies per order. For orders of larger quantities, please contact email@example.com.Download
Report: What Do Advocates Know About Comparative Effectiveness Research?
Results of A Survey Conducted By Research Advocacy Network (RAN) "What Do Advocates Know About Comparative Effectiveness Research?"Download
RAN Report: 2010 Survey Providing Results to Participants in Biospecimen Studies
This 4 page summary report of the survey in the summer of 2010 by Research Advocacy Network (RAN) to better understand how advocates feel about receiving results obtained from biospecimens. (Adobe pdf format)Download
Involving Patients in Cancer Research: An Overview of Methods and Strategies
An important part of our work at Research Advocacy Network (RAN) is to advance patient care by encouraging and enabling cancer patient and advocate participation throughout the research process. We believe that patients and advocates can play valuable roles along the research continuum, from concept development to post-trial communications. Incorporating the patient voice in cancer research is intuitively important and has the potential to help research progress faster and further. Even post-research, patient and advocate participation can help smooth the transition of basic scientific discoveries into clinical practice. This short report details methods and strategies used to accomplish this engagement.
Tutorial: Understanding Clinical Trial Design
This 52 page tutorial was developed by Research Advocacy Network to assist research advocates in developing strategies and contributing to discussions about clinical trial design. Text includes an expanded glossary of terms, discussion of Bayesian statistical design. Authored by Jane Perlmutter, PhD and funded by the Advocacy Core of Indiana University Breast Cancer Center of Excellence for Individualization of Therapy (George Sledge, MD, Principal Investigator). Currently this tutorial is only available in pdf format.Download