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The Research Advocacy Network (RAN) is a non profit organization working to bring together all
participants in the medical research process with the focus on education, support and connecting
patient advocates with the research community to improve patient care. The patient advocacy
movement has changed the face of research. Through their efforts, research advocates have begun
to help shape the design, conduct and dissemination of medical research. As the involvement of
advocates in research grows, there is a need to educate more advocates and integrate them more
fully into the research community. RAN develops relevant materials to advance patient focused
research.
RAN works to equip advocates for more purposeful and effective advocacy interactions with the intent
to collapse the amount of time it takes for research results to reach community practice.
What is research advocacy?
Research advocacy infuses research with the patient perspective from the questions that are asked in
research to the way people who participate are protected from risk and how results are provided.
Who can be involved?
Advocates who want to make a difference.
Researchers and healthcare providers who need advocates to help their programs reflect the needs of patients.
Why should I be involved?
With almost 1.4 million new cases of cancer predicted to be diagnosed this year and only 5% of the
adult population participating in clinical trials it will take much longer to prove the safety and
effectiveness of the 395 cancer treatments that are currently in the "pipeline." Also, consider that it is
now estimated to take 5-8 years to develop and produce a new drug at an estimated cost of over
$800 million. Advocates are needed to inform the process from discovery to FDA approval and to
provide the patient’s perspective to scientific pursuits in search of new therapies.
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